Thursday, January 31, 2013

Out with the PICC!

Today I had a visit with my doctor. It's the first in 10 days, since he was on vacation, and 10 days since we discontinued the IV antibiotics.

I had blood drawn on Monday and I got the results today. My blood work looks much better, my white cells are way down out of crazy highs and even my eosinophils went dramatically down. All my many tests for fungus came back negative and I'm not culturing any new bacteria in my lungs. My doctor is calling this one serum sickness so even though my lung function has not recovered and I remain currently at 37% (lower airways at 15%) we are calling it a day and the PICC line was pulled.

My hope is that in the next month I can continue to hibernate and sleep a lot (my iron is way low) and stay away from viruses. My fevers have finally given up after 30 days. Whew! That was a lot of days. So I think the virus is gone. At first we suspected Epstein Barr Virus, but that was ruled out with later blood work. Although I did learn that I have had EBV in the past. I wonder when that was? I've been chronically tired for nearly two decades, so I can only imagine at which point I contracted EBV from god knows where.

My whole house seems to have escaped whatever plagued me for so long. I will continue my arduous lineup of treatments every day and I start Cayston in the morning. (Not my favorite but at least it's quick and painless.)  I hope my lung function eventually recovers. It reminds me of the epic IV battle during the same time of year in 2006, my 30th birthday no less. I had 7 weeks of IVs and finally we just pulled the plug and threw our hands up in the air. Sometimes less is more I guess. We'll see.

Tuesday, January 15, 2013

Future Star?

Tom begrudgingly tried out for a select soccer team. Actually the try outs were for a particular football club called FC Elk Grove. From the try outs they pick you for their competitive teams (both A and B teams) and select teams (I'm not sure if there are A and B select teams).

Competitive soccer is "year round" from March to November. That can't be right because it's 10 months long, but anyway, you get the idea. I'm new to this!

I kinda wish he would have made a select team. It's cheaper and the season is shorter. But they like to take the talented players to the competitive teams so he made the U9 Boys Competitive FC Elk Grove team for the 2013 season. The first 3-6 weeks of practice will determine if he is placed on the A team or the B team. There's no difference in price really and when all is said and done I expect we will have shelled out nearly $2K for the season but the A and B teams do play in different tournaments depending on the club's decisions. It's my understanding the B team might not play in as many games or tournaments or something.

Anyway, a congratulations to Tom. I'm VERY proud of him and I know he's quite talented.

He's actually quite upset that he made the team which sounds funny. His recreational soccer team, which he has played with for 3 years, is breaking up. At least three of the boys are going comp/select but they are a year older and they play U10.  Tom has always "played up" a year so this is hard on him.  Now he's the oldest in the class.

I know another boy not coming back next year and neither coach is coming back either. So it's a bit like changing schools for him. New coaches no matter where he goes, new teammates. This little mama's boy does not like change, but I know after a month of practices, heck, after a week of practices, he will be loving his new teammates. Being one of the biggest and one of the oldest on the team might make him one of the more experienced. Not for long, I'm sure. This is a good club and I hope they are great teachers.  This will all be new and all very interesting as it unfolds this year.