Wednesday, March 17, 2010

On My Way Home!

Fingers crossed, I get to bust out of club med on Friday! That will be an 11 day stay. I still have a long way to go. My FEV1 on Monday was 1.12 Liters (36%). I'm sure I'll have one more check before I leave here on Friday. I hope it goes up from there. My goal is at least 1.4 liters by the end of this IV round.

This hospital stay has flown by in some ways and dragged in others. It surprised me that I was as sick as I was and to have to go from feeling short of breath, getting an xray, to being told you are being admitted the next day, well, that's never happened to me before. I had no idea I was that sick with pneumonia.

I'll be glad to be outtta here there because the last three nights I've had nurses that just won't leave me alone! I swear they stand by my door in their yellow precaution gowns and wait for me to get up at pee at 2 in the morning so they can burst into my room, turn on the light and ask me how many times I peed and if they can take my vitals. I usually throw them out and tell them I'm SLEEPING and I have ORDERS in my chart to LEAVE ME ALONE! It's pretty annoying. I hadn't had any problems with this up until the last three nights. So I've been exhausted during the day because I get up to pee about 4 times a night, thank you antibiotics and I'm interrupted several times during the night with questions and such.

Overall it's relaxing to be here because I don't have to take care of the kids, but I miss them. Oh, I miss them so much! They are coming home from Grandma's tomorrow and I will be home around the same time I hope. We'll see. My orders have already been written, so my goal is to be home with my IV meds in hand for my 3pm treatment. Wish me luck!

Tuesday, March 09, 2010

Heading to Club Med!

I'm heading into the hospital today. I don't know how long I'll be there. If I can finish a 2 week course of IV antibiotics and then be done for good, I would love to just get it all done there. But if the IVs will last longer than 2 weeks, I'll probably come home around day 9 or 10.

I had a very long day yesterday. I went to see my surgeon as a follow up for my hernia surgery. Everything looks good except my swelling. I'm having severe swelling in my feet. But the repairs all look good. I might even get my last drain out in the next day or two. He's going to make a house call to my hospital to take it out for me on Weds or Thursday. It's still producing a lot of bloody fluid, which is good, so it's doing it's job. But it's annoying and I just want the thing out.

After the surgeon I went to see Dr. Chipps only he wasn't there so I saw the nurse. Once I saw my PFTs I knew it was bad. I knew I couldn't breathe and I knew I couldn't get off the oxygen (I'd been on it 24x7 since the surgery on Feb 26) but I had no idea I was at 29/30%. That's like transplant stage. Crazy! I have never been that low in my life. 0.95 liters. Under one liter. That's..... uncool. No wonder I can't walk! Off then I went to lunch. Lunch at a restaurant by yourself is not nearly as much fun as it is with friends. So I ate and left to get a chest xray. By the time I got home the nurse had the xray results and had already talked to the doctor. He said he definitely wants to admit me today, Tuesday, because that's my lowest PFT ever! Then he also said I have pneumonia in my right upper lung. Great.

The did a sputum culture during my surgery 11 days ago and they had the preliminary results, which were good. Basically I'm not growing anything new or devastating down there. It's just the regular old PA rearing it's ugly head. Poor Abby, thought SHE gave me her pneumonia. She had a different kind for sure b/c healthy people can't culture PA. I told her in no way did she do that and she did just fine while I was taking care of her. Now the fact that Tom gave her the cold that gave me the cold... well, it's debatable to say Tom actually did this. But that is the price I pay to send my kids out in public, *gasp!* where all the germs are! I think we had a good run, no colds since August when they started Kindergarten. That's pretty fantastic if you ask me!

So my 2.5 year streak of no IVs is over. I'm back on the juice. They'll have a bed ready for me at 2pm today. Wish me luck!

Telford Twins Feb 2010 Update

February is already a short month, but add two sick kids and a sick mom for weeks and it's just a blur. Tom and Abby's cold brought on severe ear infections for them. They were sick for weeks and part of the fun was hearing loss. Some of the hearing loss brought some great stories about miscommunication.

For example, when Tom returned to school he jumped into the car on the way home and was so excited to share what he learned. It went a little like this:

Tom: "Mom! Guess what?! Did you know there are fifteen stars on the American flag because we have fifteen states?"
Me: "Ms. W said there are fifty stars on the flag, not fifteen." As I try and annunciate as well as I can for the hard of hearing in the back seat.
Tom: "NO! She said FIFTEEN!"
Me: "No, Tom, she said fifty."
Tom: "NO! She said FIFTEEN. How do YOU know anyway? Did YOU count them?!"

And then he scowled at me in the rear view mirror the whole way home. He didn't say another word.

Abby had similar stories that went a little like this:

One morning she had just gotten up with 105 degree fever and pneumonia and I asked her if she wanted a straw cup so she could sit on the couch and drink her juice instead of having breakfast right away. She stared at me blankly. I asked again and she stares at me and in total and complete honesty says, "Yes, I would like to watch a movie."

We did manage to have some fun adventures in February, like a trip to see Disney on Ice World's of Fantasy Tour and Tom losing his very first tooth!

For pictures from February 2010 click HERE.

Sunday, March 07, 2010

Lots of Sleep

Since my surgery I've been on some pretty heavy drugs and they make me sleep a lot. Today after I got up at 7am for breakfast I went back to bed utnil 1pm. Well around 4pm Tom comes up to me in the kitchen and complains that he wants ice cream before dinner because I'm having ice cream before dinner.

Well we all know that's not how it works around here. Dinner first, fruit second and then dessert. I wasn't feeling well and the only thing that sounded good was ice cream, so ice cream I had.

Tom looks at me and says, "Mom I thought you said you were going to be sleeping a lot these days. So how come you are not sleeping." I told him I am doing a lot of sleeping, but right now I'm going to eat my ice cream.

As I turned around to walk away, I can feel the fire coming out of his eyes as he follows me down the hall and he says, "Fine! I'm going to do this." and then STOMP! He stands on my oxygen tubing and sends me flying backwards almost spilling my ice cream. Nice. Real nice.