Thursday, April 24, 2008

It's A Twin Thing

Tom and Abby spend every minute of every hour together whether is awake or sleep so it's no wonder they have great affection for one another. They are constantly aware of where the other one is, what s/he is doing and how that affects what they are doing themselves. They eat together, sleep together, bathe together, play together, there's really not one thing they do without each other.

Yesterday I found them after their nap, both with plastic bins on their head to protect from the "rain" in their room and they each had on slippers, but not a pair of slippers. They split up their slipper pairs and each had one slipper from each set on either foot. It was somewhat amusing to see Tom squish is sasquatch foot into Abby's tiny pink Princess slipper.

This morning they were quiet in the car on the way to preschool for quite some time. I flipped down my vanity mirror so I could see them in the back seat. They were holding hands!

And if that isn't enough, they had an assignment at preschool today. They took magazine cut outs of various flower arrangements and pasted them into a book. They got to title the book whatever they wanted. The preschool teacher explained Tom was one of the first kids to make his project and she asked him what he wanted to title his book. His response, "Abby Flowers." Abby was clear on the other side of the room busy with other things, so she had no idea! Then when it came Abby's turn to make her book and put a title on it what do you suppose she picked? "Abby Flowers" of course! Must be a twin thing.

Sunday, April 20, 2008

The Lost Red Ribbon

Even though Tom is 3.5 years old, he is still a baby at heart. He is extremely attached to two stuffed bears he's had in his bed since the day he was born. One of them was clearly meant for Abby, as they are identical aside from the color, but as soon as he could steal from her, it was his. One of the bears is yellow and the second bear is brown. They both have a satin red ribbon around their neck. Tom uses the ribbon on "brown bear" to sooth himself to sleep. He's used it for about 3 years already. He doubles over the ribbon at one end and makes his way to the other end until he's "done" and he does this over and over. He used to make a noise when he worked on his ribbon but that stopped about a year ago.

Anyway, lately he has detached brown bears ribbon from his neck. This makes for many mornings of searching the tossed sheets on his bed for this 10 inch ribbon. Yesterday Paul took the twins to nap at his parents house. Both brown bear, yellow bear and brown bear's ribbon made the journey as well. As they all got home last night, it was discovered brown bears ribbon was...MISSING! It had been left behind at Oma and Papa's.

You should have seen the look on Tom's face. Of course his solution was to drive back there, but it was too late for that 70 mile round trip at 8 PM! He sat in the middle of the living room floor, his eyes welling with tears, wiping them away with the fuzzy brown bear. Oh, my heart broke! He wasn't screaming, he wasn't even whimpering. It was like heart broken tears, like the tears you cry when you receive awful news, just spilling down his face. He let me carry him to bed and then in a huff just rolled over facing the wall, clutching both bears and cried softly for a bit. Oh, the heart ache!

All is right in Tom's world again today. Paul drove the round trip this morning so we have THE RIBBON safe and sound back in our possession.

Picnic Day

Yesterday, Picnic Day, was no picnic for me. Alas this cold got the best of me and developed into gigantic gobs of goo in my lungs and I couldn't get out of bed yesterday, or today. I think I'm headed for IV antibiotics tomorrow. Can you handle the suspense?!

The twins however did have a blast, once they got over the fact that we were not going as a family, and they would have to leave mommy behind at home. They ate pancakes, watched the parade, hiked across campus, went to the petting zoo, played on Hannah's jungle gym, dined on cupcakes, cookies and french fries. A three year olds dream really! Paul was nice enough to take pics of the highlights like....

An egg



A bike



A cow



A bus



A car



A horse

Thursday, April 17, 2008

Strange But True

Tom said something funny on Sunday night. We were talking about Picnic Day all weekend and on Sunday night he said matter-of-factly, "So six more days until Picnic Day?" And by golly, he was right! Paul and I both looked at each other, thinking, did you tell him that? I certainly didn't tell him that. Then we praised him for getting it right. He of course thought nothing of it.

Well after not mentioning picnic day all week, today, TWO days before Picnic Day, he says to me at breakfast, "So, two more days until Picnic Day?" Stunned again, he is right! Then he adds, "And then one day?" So I'm pretty sure I'm harboring a genius at home, but most of you knew that already I'm sure.

His comment freaked me out a little bit though. TWO more days??? Ack. We're all still hacking and sniffling our way though truck loads of Kleenex around here. Abby's still pretty sick, nose dripping, hacking cough and the like. Tom, not so much today. I didn't even have to scrape dried boogers off his forehead this morning.

Today is my fifth day of quarantine by the way. I haven't left the house since lunch on Saturday. I kinda feel like I should be dressed with shackles and only dining on bread and water. If you want to come by for a visit you'll have to check with my CO first.

Wednesday, April 16, 2008

Am I the Only One?

Ok, you've got to tell me, am I the only parent out there that purposefully dresses their sick children in long sleeves so they have somewhere to wipe their nose?

It's true! Especially for Tom. We're all sick (again) and the snot is a-flowing! Tom will use anything nearby as kleenex, mom's shirt is high on the preference list, as well as his favorite stuffed animals, his snot hankie (a tri-folded cloth diaper) or get this, he will get down on all fours and use the carpet. Gross! So my solution has been to make sure he has long sleeve t-shirts on, that way his most preferred method is right there easy access and easy to wash at the end of the day!

Tuesday, April 15, 2008

Dog Days

Look at that good looking dog! Our first born. 90 pounds of pure splendor I tell you.



The twins have never really played much with Orion. He is 100% an outdoor dog. Tom and Abby mostly run from him as he licks the sunscreen off their arms and faces but now they are actually enjoying him as a pet. Tom especially enjoys throwing the ball for (at) him. Abby is still very cautious around him, but at least she will go out in the backyard without clinging to me in sheer terror.

In other news we're all sick over here again. This time the twins shared their cold with me, as opposed to last month's fortune when I shared it with them. Of course Mr. Bionic is not sick at all and frankly, I hope it stays that way.

Saturday, April 12, 2008

The No Sleep Sleep Study

I am quite certain the person who thought up the brilliant idea of "sleep study" wasn't too keen on sleep. I had nothing to do last night, after all it was a beautiful Friday night, still 75 degrees when the sun was going down, so why not check into a sleep center just to see what all the fuss is about. So that's what I did.

I arrived about 5 minutes late, mostly due to the fact that I had to turn around 10 minutes into my trip to go home and get my own pillows. Anyone who has ever stayed in a hospital before knows the pillows suck. They are literally 50 thread count cases over a rubber piece of foam. Nothing says sweet dreams like a hot, flat, sweaty pillow! I quite enjoyed my detour as I forgot how nice it is to drive around town at that hour in that weather.

Upon my arrival I was standing in line to get checked in to my "hotel" room. There was one guest ahead of me. He didn't bring his own pillows. Sucker! I was lead back to my room after signing consents for all sorts of things, like the center can't sell my sleeping video online etc. See there in my room, the night vision camera to the left of the TV:



I got a quick Sleep Center tour, which included the two community bathrooms, a break room (incase you get tired of sleeping) and the command center where they watched my every move. My single room was tiny. Just a full size bed and some random equipment.



The first thing I noticed was this sign posted by the door.



I wonder how many people get reprimanded for sleep walking the halls naked.

I was left alone in my room with a questionnaire about my sleep habits. Unfortunately for me, I'm not sure how loud I snore (on a scale of 1-5, yes, seriously!) or if my neighbors ever complained to my husband about it. I should have asked the tech to fill in that part the next morning. Just as I was settling into one of my favorite TV shows, I was interrupted to go get rigged up. (darn you for not having tivo!)

The first thing the tech says to me when we get to the orientation room is, "You don't look 32. I checked your chart and it says you're 32!" I asked her to humor me and tell me how old she thought I was. She said 18. Paul's a lucky man, don't you think?

In the following few minutes I was swabbed with goo, wiped with alcohol prep pads and taped up beyond recognition. The finished product was something out of a terribly bad Sci-Fi movie. There were straps and leads and tape and sensors on just about every inch of my face as well as my body. I was wrapped up all snug as a bug in a cobweb. See for yourself!



In the end I think I did manage about 5 hours of sleep. The good news is, although I was prepped with an oxygen canula, my o2 sats did not fall dangerously low, so they never turned on the oxygen. This is very exciting as I might be able to travel without toting an oxygen compressor, in addition to my two other compressors I need on a daily basis.

So if you're looking for a good time on a Friday night, stop by your local sleep center. They are sure to give you an exciting night you'll be blogging about for years to come!

Friday, April 11, 2008

CF Spoons

I read about the Spoon Theory several years ago and it was recently brought to my attention again. When I first read it, I couldn't believe how much it applies to my life with Cystic Fibrosis. If you're interested in finding out what I'm talking about just click here. It's a bit of a read but I think it accurately describes how I have to pick and choose what to do on any given day, even a "good" day.

Monday, April 07, 2008

To lump

Tom has a created a new verb. When his clothing becomes bothersome he tells me it "lumps him". As in "lumpy" pockets are annoying. Or the "lump" from the seam in his socks bother him. I thought I'd save Webster the trouble by creating this entry for them.

lump verb lumped, lumping

1. causing discomfort or irritation, troublesome, causing annoyance These socks are lumping me. These pockets are lumping me

Thursday, April 03, 2008

Gas Mileage

I have a theory about gas tanks. Now, I've only ever own three cars my whole life. The first was gifted to me when I was 16. It was a 1990 Mazda 323. I drove it for 8 years until I bought my first SUV in 2000. I drove that SUV for 7 years until I bought my very first brand new car, the Escape Hybrid. All three cars were very different gas mileage wise, but one thing remained the same. I seemed to get better gas mileage at the top of the tank than during the last half of the tank. And now thanks to a handy dandy computer installed in my new Hybrid, I can prove just that.

I just about died on Tuesday when I checked my average MPGs after running some errands. 24 MPG. What???!!! I called Paul and asked him if he was playing an april fools joke on me. Turns out, he had reset the average MPG counter the previous day. My gas tank was nearly empty and as I ran errands around town I average 24 MPGs. Gasp!

Fast Forward to today. I filled up my tank Tuesday night and reset my handy dandy computer that tells me the average MPG. I've ran practically the same errands as Tuesday (Preschool, grocery store etc), driven with the same gas saving techniques as Tuesday and with a full tank of gas I'm now getting 37.6 MPG. Now that's more like it! So there you go folks. Proof as to why you should gas up when the gas tank is still half full.

I rest my case.